This July marked an important milestone for The Nerve of My Multiple Sclerosis CIC (The Nerve of My MS) as we celebrated four years since our organisation was founded.
Over the past four years, we have worked to improve awareness, representation and support for Black heritage communities affected by multiple sclerosis (MS) and other neuroimmune conditions.
What began as one person’s determination to change the narrative has grown into an international community connecting people across the United Kingdom, Ghana and Nigeria through advocacy, education, peer support, research and digital innovation.
As we celebrate our fourth anniversary, we are also excited to announce our next major milestone.
On Saturday 12 September 2026, The Nerve of My MS will host the first Black Neuroimmune Diseases Patient Day 2026 in the United Kingdom.
The event has been created to provide a welcoming space for people of Black heritage living with MS, neuromyelitis optica spectrum disorder (NMOSD), myelin oligodendrocyte glycoprotein antibody associated disease (MOGAD), clinically isolated syndrome (CIS), stiff person syndrome (SPS), their families and carers.
For many people, living with a neurological condition can feel isolating. That feeling can be even greater when you rarely meet others who share similar cultural backgrounds or lived experiences. Our Patient Day aims to bring people together in an environment where they can learn, connect, ask questions and build lasting relationships with others who understand their journey.
The afternoon will include patient stories, discussions, opportunities to meet members of the community and time to connect with organisations and healthcare professionals who are committed to improving care and reducing health inequalities.
The event forms part of our wider mission to ensure that Black voices are heard within neurological research, healthcare and patient advocacy, while helping people feel informed, supported and empowered throughout their healthcare journey.
As our community continues to grow, we remain committed to creating opportunities that bring people together, amplify underrepresented voices and help shape a more inclusive future for everyone affected by neuroimmune diseases.
We look forward to welcoming our community in September as we continue changing the narrative, amplifying every voice.
About The Nerve of My MS
The Nerve of My Multiple Sclerosis CIC is a non-profit organisation dedicated to supporting individuals of black heritage, especially black women, with Multiple Sclerosis (MS). We create a safe space for open discussions about MS, empowering our community and reducing health inequalities. Through social activities, we combat isolation and foster connections. We also collaborate with healthcare professionals to address racial prejudices, encouraging everyone to seek the medical help they need.
Blog courtesy of The Nerve of My MS, a Patient Community Day Supporting Partner.