What’s New and What Matters to Patients? | Patient Community Day 2026 (Part 1)

What does the MS community need from research – and how can we make sure the voices of people living with MS help shape what comes next?

As part of Patient Community Day 2026, we’re sharing a special collaborative episode from RealTalk MS and the ECTRIMS Podcast, hosted by Jon Strum.

Jon is joined by Karen Jacoby, MS advocate and person living with MS, and Peter Feys,  Professor of Rehabilitation Sciences and Neurorehabilitation at Hasselt University – for a conversation that puts the patient perspective at the centre – exploring the relationship between research, lived experience and the priorities that matter to people affected by MS.

Recorded at Patient Community Day in Toronto, the episode forms part of the wider conversations taking place during the 10th Joint ACTRIMS-ECTRIMS Meeting – but this one is specifically for, and about, the MS community.

This episode was produced and hosted by RealTalk MS – a Supporting Partner of Patient Community Day – and is being shared across ECTRIMS channels with permission from Jon Strum to help the conversation reach as many people as possible.

This ECTRIMS podcast episode is supported by an educational grant from Alexion, AstraZeneca Rare Diseases. Bristol Myers Squibb, Novartis, Roche, Sanofi, and UCB. Educational grant providers have no input into the podcast series content.