We are proud to be part of a truly historic moment as official sponsors of the very first AFRICTRIMS Patient Community Day taking place in Accra, Ghana on Friday 29th May. The main AFRICTRIMS conference will commence on Saturday 30th May 2026, On World MS Day and end on Sunday 31st May 2026.
This milestone represents far more than a single event. It marks a shift in visibility, recognition and momentum for people living with multiple sclerosis and other neurological autoimmune conditions across the African continent. In regions where awareness remains limited and understanding is still developing, moments like this matter. They create space for voices that have too often gone unheard.
For us, this work is deeply personal.
Through our NGO branch, The Nerve of My MS Ghana, we will be actively participating on the ground, working alongside local stakeholders, patients and advocates. Our ambassadors will also be present at the main conference, contributing to conversations that are shaping the future of neurological care and research in the region.
What makes this moment even more powerful is the strong representation emerging from within our own community.
We are especially proud to celebrate the achievements within our network.
From Nigeria, Mrs. Oyefunso Orenuga, Immediate Past Provost of Lagos State College of Nursing and a member of our Nigerian team from The Nerve of My MS Nigeria, has had her abstract accepted. Alongside her, our Ghana Ambassador, Belinda Dentaa Oduro, has also had her abstract accepted at the AFRICTRIMS conference.
We extend our heartfelt congratulations to both women. Their contributions represent not only personal achievement, but a powerful step forward in ensuring that voices from West Africa are seen, heard and recognised within global neurological research and advocacy spaces.
We are incredibly proud of them.
Their work reflects a broader shift. This is not just participation, this is leadership. It is evidence that the communities we serve are not only part of the conversation but are helping to shape it.
Representation in research matters. Visibility in data matters. And ensuring that people from underrepresented backgrounds are included in global discussions is essential to driving meaningful change.
Our work does not stop in Ghana.
On 3 June 2026, we will be in Lagos, Nigeria, hosting our very first in-person Patient roundtable in the country. This will be an intimate, peer-support focused event designed to bring people together in a safe and understanding environment. It will be a space for patients to share their experiences, connect with others and feel seen.
But more importantly, it will be a space for us to listen.
In many parts of West Africa, conditions such as MS, NMOSD and MOGAD are still not widely understood. Awareness is low, diagnosis is severely delayed and support systems are often limited. We recognise that we do not have all the answers, and that is exactly why these moments of connection are so important.
We are there to learn directly from the people living these experiences. To understand the gaps. To hear what support truly looks like on the ground. And to ensure that future initiatives are built with communities, not just for them.
Across both Ghana and Nigeria, our mission remains clear. No one should feel invisible within their own healthcare journey. No one should be left behind simply because of where they live or how their condition is understood.
This expansion into West Africa reflects a growing commitment to global equity in neurological health. It is about building bridges between communities, strengthening local presence and creating pathways for long-term impact.
Alongside our on-the-groundwork, we are also preparing to launch our new website, which will act as a central hub for our growing international activities. From community engagement to research initiatives, this platform will help us stay connected, share knowledge and create opportunities for wider collaboration.
In the meantime, we invite you to follow our journey across Instagram, LinkedIn and TikTok, where we actively share updates, stories and insights from the work we are doing across the UK and internationally.
This is about more than awareness.
It is about building trust.
It is about amplifying voices.
It is about creating space where people feel seen, supported and empowered to take part in conversations about their own health.
As we look ahead, we are excited about what is to come. More events. More listening. More collaboration. And a continued commitment to ensuring that the communities we serve are always at the centre of everything we do.
This is only the beginning.
We are just getting started.
Written by: Natalie Diana Busari | Founder, The Nerve of My MS | 3rd May 2026
About the Nerve of My MS
The Nerve of My Multiple Sclerosis CIC is a non-profit organisation dedicated to supporting individuals of black heritage, especially black women, with Multiple Sclerosis (MS). We create a safe space for open discussions about MS, empowering our community and reducing health inequalities. Through social activities, we combat isolation and foster connections. We also collaborate with healthcare professionals to address racial prejudices, encouraging everyone to seek the medical help they need.
Blog courtesy of The Nerve of My MS, a Patient Community Day Supporting Partner.