Europe is home to a vibrant network of patient organisations, advocacy groups, healthcare institutions, and research centres dedicated to improving the lives of people affected by MS, NMOSD, and MOGAD.
Through their support of Patient Community Day 2026, these organisations help ensure that the latest research and expert insights reach communities across the continent.
Alsacep is an association dedicated to MS/NMO/MOGAD patients in Alsace, France. The number of patients is around 5500. The main goal of the association is to facilitate medical and paramedical follow-up to the patients wathever thire location in Alsace. Alsacep provide some educational program and some help for psychological and physical well being.
Our mission is to provide each person affected by Neuromyelitis Optica and MOG antibody-associated disease, as well as their families, with the necessary support, treatment and information throughout their lives. We do this based on ethical commitment and responsibility, promoting opportunities that contribute to their well-being, quality of life and full integration into an inclusive and supportive society, with equal conditions for all.
BeeWellWithMS is a clinician-led, patient-focused platform empowering people with MS through education, storytelling, and lifestyle tools. Founded and hosted by a neurologist Agne, it bridges science with lived experience via podcasts, infographics, and global outreach amplifying voices, promoting holistic care, and driving real change in the MS community.
Our single aim: to prevent and reverse disability for everyone with multiple sclerosis, neuromyelitis optica and MOG associated disease. We achieve this through 6 themes: Personalising Treatments through Big Data and AI; Discovering and Proving New Repair therapies; A Visual and MRI Outcome Development Programme; Studying Children with MS, NMO and related conditions; Study ageing in multiple sclerosis; and Measuring and sustainably addressing healthcare inequalities.
Esclerosis Múltiple España is a non-profit entity of national scope and declared of Public Utility. We work together with 37 entities in Spain. Our mission is promote different activities related with health and research and social actions to improve the quality of life of people with MS and other degenerative diseases of the nervous system.
The European Charcot Foundation (ECF) is an independent non-profit advancing multiple sclerosis (MS) research. Governed by a co-opted Board of leading active MS researchers worldwide, it connects 500 MS institutes and 1,500 researchers. Supported by private partners, MS societies and industry, ECF helps align key stakeholders and highlights new research directions through its Annual Meetings. Registered in Brussels, Belgium.
For over 30 years, the European Multiple Sclerosis Platform (EMSP) has been Europe’s leading voice for people living with Multiple Sclerosis (MS). As the umbrella organisation for national MS societies, EMSP drives the MS research agenda and builds strategic alliances across Europe to influence policy decisions to ensure equitable treatment and care for people affected by MS. In 2024, EMSP expanded its focus to include advocacy for people with NMOSD and MOGAD.
France Sclérose en Plaques is both a patient association and a foundation and has for objective to become the reference in multiple sclerosis and associated disorders in France. France Sclérose en plaques have 5 main missions: to fund research, to help people affected by these diseases (patients, families, caregivers), to inform and train on the diseases, treatments and aids, to raise awareness among public opinion and the media, to mobilise public authorities.
The DMSG federal association, founded in 1952/1953 by medical experts, advocates for the interests of the more than 280,000 people currently living with MS in Germany and offers them and their families professional information, advice, and support. The non-profit association’s range of services is complemented by training courses for nursing staff, MS nurses, and MS consultants. With a federal association, 16 regional associations, and currently 750 local contact groups, the DMSG is now a strong community of MS patients, their families, and dedicated volunteers and professional helpers.
It is both a self-help and professional association. Research into the causes and effective treatment of MS is an important concern of the dederal association of the DMSG. The aim is to advance research to such an extent that MS can be treated more and more effectively. The patron of the DMSG federal association is Christian Wulff, former Federal President.
The European Brain Council (EBC) is a network of key players in the “Brain Area”, with a membership encompassing scientific societies, patient organisations, professional societies and industry partners. A non-profit organisation based in Brussels, its main mission is to promote brain research with the ultimate goal of improving the lives of the millions of Europeans living with brain conditions, mental and neurological alike.
The Hungarian Neuroimmunology Society is a non-profit, non-governmental organization with the aim to provide educational and scientific support for healthcare professionals in the field of neuroimmunology (among them multiple sclerosis and related disorders, NMOSD, MOGAD, MG, CIDP etc.). In collaboration with the patients’ organizations, it supports patient education and improves the management of patients with neuroimmunological diseases.
For 50 years, the Israel MS Society (IMSS) has been dedicated to supporting MS patients throughout Israel and raise public awareness of the disease. Our services include social and rehabilitative support, information, advocacy, a dedicated helpline, legal representation, a nationwide network of 20 support groups and specialized workshops facilitated by certified social workers and seminars. Our activities and website are available in Hebrew, Arabic, Russia & English.
AISM, the Italian Multiple Sclerosis Society, along with its Foundation FISM is the only organisation in Italy that takes care of every aspect of multiple sclerosis and related pathologies, with a specific focus on rights, advocacy, health, social services and scientific research. Since 1968, AISM is the reference point for persons with MS, their families as well for healthcare and social stakeholders so as for public institutions. AISM significantly contributed to ameliorate the multiple sclerosis scenario in Italy.
We provide a wide range of specialised services and resources on a national, regional and local level. We also provide the only national respite and therapy centre for people with MS in Ireland. More than two-thirds of the 10,000 people living with MS in Ireland access these resources.
MS Society is the leading charity dedicated to supporting the estimated 150,000 people in the UK living with multiple sclerosis (MS) and those who support them. They offer a range of services to help support people to live well with MS, as well as fund ground-breaking research into MS. They advocate for better access to treatments and raising vital awareness of the realities of living with the condition.
MS Together is a charity providing advice and support to people affected by multiple sclerosis (MS), with a focus on those aged 18–35 in the UK and Ireland. We offer peer support, information, and community-led events to help young adults navigate life with MS and feel less alone.
MS Trust is a UK charity who bring together expertise from every angle to help everyone feel more in control of their MS today and every day. Through trusted information and compassionate support, the training of new MS healthcare professionals, and research rooted in real experience – we’re here for every MS. Every day.
The Austrian Society of Neurology (ÖGN) represents neurologists in Austria, promoting education, research, and public awareness. Founded in 2000, it advocates for the field nationally and internationally, and is active in global organizations like the WFN, EAN, and UEMS.
Overcoming MS is here to bring hope. We are here to help you understand how lifestyle choices can affect your MS and your health. Research shows that lifestyle choices can have a big impact on how MS progresses, and how well you feel living with MS. It also shows that the more positive changes you make, the bigger the impact. Overcoming MS gives you practical support, tips and a community of people who get it. We’re here to support you in making changes to help you live well with MS.
Polish MS Society is a non-governmental organisation aiming to improve quality of life of people living with MS & their close ones by expanding access to MS diagnosis, treatment & quality health care, providing free of charge support & increasing knowledge about the disease among society. It has over 20 chapters rounding up several thousands of people with MS. The organisation collaborates with recognisable clinicians in MS field and is a member of international societies: MSIF & EMSP.
Portuguese Association’s goal is to provide a multidisciplinary engagement to discuss the challenges of demyelinating diseases—through research, national and international collaboration, and the disseminating of knowledge that leads to better care, deeper understanding, and a promising future for all involved.
The Research Center for Clinical Neuroimmunology and Neuroscience Basel (RC2NB) is a leading destination for cutting-edge research and clinical innovation. As an academic-industry initiative, we are committed to advancing Neuroimmunology and Neuroscience, focusing on understanding and treating Multiple Sclerosis and other neuroimmune diseases.
In collaboration with the MS Center at the University Hospital Basel, RC2NB delivers an interdisciplinary approach to patient-oriented research and care.
Shift.ms is the digital community for people with multiple sclerosis (MSers). Founded by MSers, for MSers, as a charity we offer social and emotional support, inspiring MSers to take charge of their health as soon as possible after diagnosis. We’re independent and we’re free.
Talks With MS is a registered charity founded by Terri-Louise Brown in 2016 to support individuals living with Multiple Sclerosis. It connects people through mentorship, education, and shared experiences while amplifying Black and Brown voices in MS spaces. Acting as a “big brother/big sister” network, it provides a safe space for honest conversations, advocates for accessibility, and works to bring greater diversity and inclusion to MS-focused communities worldwide.
MSIF is the global movement of MS organisations, by and for people affected by MS. We network, learn from each other, mobilise and enable global collaborations, to achieve the vital goals that can only be reached by coming together as a movement. We, the Federation, are made up of national MS organisations (including their staff, volunteers and MS communities), the MSIF staff, board and committees.
The Multiple Sclerosis Fashionista (MSF), founded by Roxy Murray, is a bold platform empowering MS patients through art, adaptive design, and radical storytelling. MSF centres patient voices, challenges ableism, and celebrates disabled joy and identity. Featured in Vogue UK, Wellcome Collection, and BBC 100 Women 2024, it uplifts LGBTQIA+ and diverse voices with style, purpose, and power.
The Nerve of My Multiple Sclerosis CIC is a non-profit organisation dedicated to supporting individuals of black heritage, especially black women, with Multiple Sclerosis (MS). We create a safe space for open discussions about MS, empowering our community and reducing health inequalities. Through social activities, we combat isolation and foster connections. We also collaborate with healthcare professionals to address racial prejudices, encouraging everyone to seek the medical help they need.
The MS Register is a ground-breaking study designed to increase the understanding of living with MS in the UK. Data is collected directly from people with MS, through online questionnaires and also through clinical records. The Register also hold linked data from routinely collected healthcare records in Wales. This data is stored securely, and can be accessed by researchers looking into MS. The UK MS Register is funded by the MS Society, and is based at Swansea University.
UCMS (Ukrainian Community of Multiple Sclerosis) is a patient organization that brings together people living with multiple sclerosis. The UCMS team works directly with patients, doctors, and government authorities to ensure access to all necessary services for maintaining a full quality of life.
Our Host Destination Partners play a vital role in helping Patient Community Day connect with local communities in the host destination of our annual congress. Through their expertise, networks, and local engagement, they help raise awareness of the event, foster meaningful connections, and support participation among people affected by MS, NMOSD, and MOGAD.
The Barcelona Convention Bureau (BCB) is a specialised division of Turisme de Barcelona that promotes Barcelona as a congress, convention and incentive travel destination, and offers free and impartial advice to professionals interested in organising their meeting in Barcelona.
The Copenhagen Convention Bureau (CVB) is the official, non-profit convention and visitors bureau (CVB) for the greater Copenhagen area. It serves as a single point of entry for event planners, bridging their vision with the city’s meetings and hospitality industry to host congresses, meetings, and major events.